Ella is seven. She loves being outdoors, playing with her brother, and staying active. These are some of the moments that make her childhood special.

Ella lives with myotonic dystrophy, a condition that affects her muscles and makes everyday movement more challenging and tiring. But with determination and the right support, she continues to grow stronger, more confident, and more independent every day.

When Ella was born, her family spent long periods in the hospital, facing uncertainty about what the future might hold. Those early days were filled with questions no parent is ever prepared for. But through it all, Ella’s strength—and her family’s determination—never wavered.

Her mum, Tayla, has been there every step of the way. She brings a steady, practical strength—attending every appointment, supporting Ella through therapy, and making sure she has every opportunity to keep progressing. 

There is a strong connection among Ella, Tayla, and her physiotherapist, Imogen, as they work together to support Ella’s development.

Since then, Ella has made remarkable progress. With dedicated support from her family and care team, she is building the strength and skills needed to engage more fully in the world. At Northcott, her personalised, play-based physiotherapy focuses on strength, balance, coordination, and mobility, helping her stay independent for as long as possible.

But while Ella has been able to access the support she needs, many children are still missing out. Right now, children living with disability are going without vital therapy, essential equipment, and early support—simply because the urgent funding isn’t available when they need it most.

Time is critical—everyday counts. Without immediate support, children can lose strength, mobility, and confidence. Skills fade, and participation becomes harder. Waiting for funding can mean months without therapy—and for a growing child, that’s lost progress during a crucial window for development.